Please pray for my daughter
my sweet kid, who turned 16 yesterday, is in critical contition and will be operated on tomorrow. she has sonething called TEN syndrome--a vicious auto immune disease brought in by an allergic reaction to a medicine. affects 6 in 1 million. she is at the Grossman Burn Center here in LA. we are here because the disease attacks the skin and lining of the mouth throat esophagus, and stomach. the skin falls off in sheets. therefore it is treated like a burn. the operation is to remove affected skin, cover with temporary skin and then try to keep infection ar bay. this has all happened in the last 3 days.
please pray for this wonderful child. she is loving, fierce and strong. she has been through so much--as if our house burning was not enough--now she has this. im frightened but turning it over to God.
hug your loved ones
ivar (Caactorvike)
omg-- i cannot express the gratitude i feel for so many hesrtfelt, warm responses. nor can i tell you what comfort you have all brought. this is some kind of viscious, horrifying disease. 6 days sgo she was dancing, now fighting for her life. it attacks the skin and mucous membranes. The skin comes off in sheets. her eyes, mouth, throat snd esophagus are affected as well--the skin comes off. she is on a ventilator because her trachea is so swollen she struggles to breathe. the next 48 hours are crucial. if the swelling goes down it would indicate the progression has stopped. oh pray.
Thoughts and prayers with her, you, and yours. I'm hoping the docs get this handled quickly and brilliantly.
Ivar ~ Prayers (Lots of them) still being sent your way. Hoping that the swelling has/is going down by now.
Oh dear god Caactor. I am so sorry to hear this. Please let us know if there is anything at all this community can do for you.
Thoughts are with ya hope she beats this and recovers quickly.
Ivar, I'm so very sorry to read this. You and your family are in my thoughts and prayers. I wish I could say or do more. Just know that you have my support.
Prayers and thought go out to you and your precious daughter. God Bless her and may his healing hand guide the doctors and hasten her healing!
Ivar, prayers to your daughter and your family. Stay strong. Please would keep us updated on any changes.
Mike - please pin this thread. These are tough times for Ivar and his family, but I know they will come thru. My son had a version of this and it's scary, but he recovered nicely last spring. It's just a helpless feeling as a parent because there is little you can do but wait for the virus to take its course.
She's a brave girl, and will dancing and laughing again soon!
Ca - Ivar,
Prayers and positive vibes for your daughter, family, and friends.
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